Cyclic Vomiting Syndrome (CVS) Rare Disease Children And Adults- My Experience HubPages nanoxia ncore retro aluminium

Cyclic vomiting syndrome, also known as CVS, is a health condition where the body recurrently has severe vomiting for no apparent cause. These episodes can last from several hours, to several days. Cyclic vomiting is a rare childhood health condition. The disease is hard to diagnose as a patient will look healthy as can be in between episodes and is sporadic and un-predictable.

CVS is an unexplained disorder of children and adults that was first recurrent, prolonged anoxic brain damage pathophysiology attacks of severe nausea, and vomiting, with no apparent cause. In some patients, there is severe abdominal pain. Vomiting occurs at frequent intervals for hours or days (1-4 most commonly. The episodes tend to be similar to each other in symptoms and duration and are self-limited with return of normal health between episodes


When you watch your child go through a CVS attack, it’s heart wrenching. I wrote this to help someone else who may have a child that has this disease or maybe a mother who can’t get any answers to their child symptoms. Trying to diagnose this condition, took nanoxia project s mini almost 17 years. It’s rare, but not that so uncommon. Watching your child suffer is the worst thing on a parent. It’s especially tiring when you are fighting with dr.S and they can’t seem to get it diagnosed because it is a rare disease. Let me tell you first hand, this was horrible to watch my son grow up this way.

If you are a parent and has a baby or child that has any of these symptoms and can’t get any answers, it is possible that this may be helpful to you. As you read the story below, you will find out what happens when the attack happens and what to look for. Please read thoroughly and if you have any questions and I can help, please feel free to ask.

It all started about 2 months after my son was born. After he would be given it his bottle, he would then regurgitate half the bottle back up. He would choke and turn blue and would scream for hours and hours. He would straighten his legs and his little fists would just clench so hard. We took him several times to the emergency room because he was dehydrated all the time. He would actually keep throwing up at the emergency room, but no fever or anything. All his tests would come back negative.

To make a year long story somewhat short, they kept sending us home telling us nothing was wrong. We returned to the emergency room almost 3 times anoxia neonatal definicion a week due to hydration and vomiting. He was losing weight, and would just scream and cry so hard it made us cry. They would sometimes keep him overnight and give him IV’s to replenish his electrolytes. We switched dr.S several times because I knew in my heart, something wasn’t quite right.

The procedure was a pretty major surgery. They took a piece of the top of his stomach and wrapped it around the bottom of his esophagus and had to sew it shut to help keep him from vomiting. Well, low behold, the surgery actually stopped him from vomiting and he started gaining nanoxia ncore retro weight again. He was so lethargic all the time and lost so many vitamins & electrolytes, that he didn’t even sit up until he was a year old. He started walking at 17 months. We thought everything was good now and he was on his way to recovery.

When he was able start running and playing around 3 or 4 yrs old, we would go outside and play and after about half hour, sometimes more, sometimes less, of playing, he would curl up on the couch and go sleep. He would get up, go vomit, then go back to bed. He would sleep sometimes for 3 hours, and other times, it would be from 5 pm at night, until the next day. I remember one time I took him to a garage sale and it was hot that day; we walked up to the sale, and he said, "mom, I gotta throw up." the lady let us in her house and he vomited and sat on her couch and she gave us a very cold rag to put on his head. This is what we had to do every time it got hot out.

This went on for several years anoxic brain injury signs and symptoms, and believe me, I took him and called the dr. Weekly. They thought he had something wrong with his heart, so they put him on a heart monitor for a month. Every time he would have an attack, I had to attach it to the telephone and they would read it. That came back normal. I could go on and on. As I think back, he had some small signs starting at 2 yr of age, but wasn’t as active, so it was just so hard to really notice anything significant.

Basically, if he over-did it or got too hot, he was in trouble. Garage sales in summer were out of the question, running around with other little kids was out of the question. I can tell you so many stories we went through and the agonizing pain of what is wrong with your social anxiety disorder meaning in hindi kid, would make your head spin. I had one dr. Tell us he was ruminating (which is making himself vomit so he could eat more) and my son was not even a year old. We have been through the mill and over the hills. You name it, it was said. I can go and on and on.

But, thought I would update as he’s pretty much a man now. The horrible vomiting and curled up in a ball phase has settled down. He still gets sick with a stomach ache and does vomit once in a while from it. He still gets very very pale, vomits (depending on how hot it was),and gets a horrible migraine. Much improved, but I think mostly it’s because he has learned his limitations and if he does over-exert, he knows it was his choice to do so. There are still times that avoiding the heat is impossible, and therefore; he tries to take it easy on those days. Still limited to what he can do. We have found that the cold is his best friend.

You know I don’t believe the doctors actually knew for sure on whether he had cyclic vomiting syndrome or not… it was his heart and had to have an ablation on it – he was literally sick every day that it got over 75° outside. They diagnosed him with cyclic vomiting syndrome but after he had the heart ablation, he seems to be doing a lot better and can at least get hot without throwing up. They did say, when they thought he had the cyclic vomiting, that when he got older it would just turn into regular migraines instead of abdominal migraines… so I’m not actually 100% sure if the heart ablation helped fix it or because he’s a man now. And I totally understand what you’re saying about being a hypochondriac. My son lived in the emergency room at least three or four times a week nanoxia project s black and was in the hospital for days at a time because he was so dehydrated from all the vomiting. It may not hurt to go see a neurologist or a cardiac surgeon just to have the heart checked to make sure that that isn’t the problem… we only got it caught because he wore a monitor for a week and then whenever he wouldn’t feel good he would put the monitor on and his heart brain anoxia symptoms rate got up to 200

I remember those days scared to death about the heat…And yes, he called nearly every time sicker than a dog. First of all, you need to speak with his teacher directly if you have not done so. Also, speak with PE teacher, principle, etc. Let every teacher know of his situation. Secondly: on the field trip– specifically tell the teacher and chaperones he needs to drink gatorade/water every 1/2 hour at minimum. In his backpack, I would pack him a large ziplock bag with ice and a wet wash cloth to cool down. Even a wet bandanna in a lunch pale to wrap around his neck. I was once told we needed to move to alaska..Yes! Not kidding! Was told to get my son a cooling jacket from NASA- however–besides the cyclic vomiting, I would suggest the cardiologist visit..SVT, VSD, PAC can go hand in hand with CVS…Please email me if you need to!! Good luck anxieux definition francais to you and I understand the situation whole heartedly! It’s a nightmare, it’s frustrating and scary! OH!! Also, try excedrin migraine one hour before he leaves for the trip and take every 4 hours for prevention.. Keep him hydrated!

My son has always been very sensitive to heat. I picked him up from school yesterday and he had just had recess. He said he played on the swings the entire time and it was only about 75 here yesterday but he was overheated. Before we got home he had vomited all over me. I’m not sure if he has cyclic vomiting. He has the majority of symptoms but the vomiting is not always present. He gets so overheated though and it does not even have to be very hot out. His face turns fire engine red and his hair will be soaked with sweat meanwhile his friends look perfectly fine. He does get severe headaches recently usually followed by a night of vomiting and then he is totally normal the next day. Yesterday we got home and he was lethargic for about 3 hours but then anoxic seizure ate a big dinner and went out to play for a little while. I have asked his doctor for years why he gets overheated so easily but never get a real answer. He used to spit up terribly as a baby. I tried every type of formula and nothing worked. I recall one day changing his clothes 15 times because he soaked them with spit up. He grew at a normal rate though and eventually stopped spitting up. I remember as a small child…Maybe 2 yrs old…He would have such sweaty feet. His little socks would be soaking wet. When he got a little older he would just sweat a lot more then other kids. I’m going to ask his doctor if it could be cyclic vomiting.

My daughter was 7 months old when she started having episodes of projectile vomiting. They always started while she was asleep and I was very concerned about her aspirating on her vomit. The episodes became more sever and would last from 2 hours hipoxia anoxia up to 4 days. She would become completely unresponsive, projectile vomit and retch so bad her lips would turn blue. She was extremely sensitive to light and sound. I would actually hang blankets over the windows. She was even hospitalized for 3 days because of acidosis during an episode when she was 2. Periactin did nothing to help her. Cranio sacral therapy (a more natural approach) did wonders on releaving her vomiting. Eventually her neurologist (3 later) suggested topamax and IT WORKED!!!!. This was just before she entered prek. After being symptom free since the start of the topamax in 4th grade we decided to take her off her meds hoping she had outgrown CVS. She is now in 6th grade and has never had another "true" episode. She has had a couple dizzy spells and had very bad stomach pains for 3 days straight. Bad enough that we ran bloods, urine, and did an abdominal xray. The only thing that came back alarming was her alkaline phosphorus was extremely high. We repeated her bloods 1 month and 6 months later and they came back normal. I hope and pray that when she que es la anoxia cerebral starts into puberty CVS does not return.

I’m a 33 year old former CVS sufferer. I didn’t get a diagnosis until I was 21 and had long since outgrown the cyclic vomiting part. My dad says it started when I was about 3 and continued until I was an early teen. I remember having migraines, even as a young child and they continued to be prevalent until recently. To go along with this, I also had many allergies that went undiagnosed for a very long time.

I was hell bent when I had kids that they wouldn’t suffer like I did history of hypoxic ischemic encephalopathy icd 10. Because basically, I had no childhood. Over the 9 years of being a parent I’ve learned much about my kids’ and their bodies. My children are all very chemically sensitive, have various food allergies and intolerances and seasonal allergies as well as being anxious at times. These were all similar in me. I noticed early on with my daughter that she was extremely sensitive to most chemicals and ended up with chronic headaches at about 2 until I changed all our cleaning products and detergents and removed most food colorings from her diet. I was so worried she was going to follow in my footsteps. I have to say though, that we have avoided CVS so far. But I am extremely cautious in their diets, products we use and my kids are homeschooled to keep them away from chemicals that could be used around them that could cause them to be sick. I know most of my attacks happened on mondays after I had been back in school and could clearly smell the chemicals that the school had been cleaned with.

Maybe what I’ve done has helped, maybe my kids weren’t going to develop it at all and I’m going to crazy lengths for no reason but in my heart I really feel like removing allergy stressors and chemicals has made a big difference. I know that when I was in the midst anoxia medical definition of an attack, if my parents gave me an antihistamine it helped. I know now that with certain (not all) migraines I get, antihistamines still help. I also know that since changing our diets and cleaning products has dramatically reduced the number of migraines I have. So I have little doubt that allergies in some form are related.